RCA

This post has been copied from our "Care Page"
Posted Jul 19, 2010 2:19am


Well we have been at the Rochester Center for Autism for almost a month now. Brady's hardest thing still remains the separation thing. He is excited to go there. In fact there are times when we are at home and he will bring us his backpack and shoes. Which we assume means he wants to go there. But when it comes time to drop him off he is always trying to run for the door or cling to us when we are trying to drop him off. It is so hard to just turn from him and walk away when he is crying for us. They send home daily progress notes of the things he does each day, and on many of the notes they say he is signing more and more frequently but we do not see as much of that at home, or maybe we are not as in tuned to it as they are there at the center...I don't know. I just know that now that his 3rd Birthday has come and gone...and he is still not talking I get more and more worried every day. I worry about his quality of life. I worry about our quality of life. I worry about Piper and Hayden. Piper because she is "normal" and may suffer due to the things we can't do because of Brady. I worry about Hayden, who is developing normally to this point...but what if he were to start to regress like Brady did? Or if he is "normal" he will be in the same boat with Piper, limited by his brothers disability. We went to the Mall Of America the other day and put Brady on the rides for the first time. He had a BLAST, but, the entire day was a struggle. He had meltdowns every time it was time to get off of another ride. If we just had him to worry about, we might consider leaving to teach him that that behavior is unacceptable but then Piper suffers. Steve and I have talked about maybe having to separate our outings with the kids. Like one of us stays home with Brady where he can be happy playing with his toys or outside on the swing set, and the other one of us brings Piper and Hayden to the things that "normal" kids get to do. I hate this. When I had this perfect picture in my head of us, it was not one of a divided family. We decided to have a third child...hoping for another boy so that Brady would have a brother to play with. Now...who knows how things will be! UUUURRRRG! I just want so much for him to start talking. I think that once he can talk he can better learn to understand how to behave, and what is not acceptable. He will be able to communicate his wants and needs with out frustration, and then there will be hope for one big happy family.

Disclaimer: The information on this blog is NOT intended to take the place of diagnosis and treatment by a qualified licensed healthcare provider. Any recommendations are for educational purposes only and are believed to be effective. However, since USE of any information provided herein by others is beyond the control of Michelle Bacon, RN, no expressed or implied guarantee as to the effectiveness of this information can be given nor liability taken.